New Era of Preventing End-Stage Kidney Disease Act

U.S. Congress · HR1518 · In Committee

What the bill says

HR1518 · U.S. Congress · In Committee

Introduced 2025-02-24. Latest action: Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

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Summary (plain-language)

New Era of Preventing End-Stage Kidney Disease Act This bill establishes regional centers of excellence, postgraduate fellowships, and training for health professionals relating to the diagnosis and treatment of rare kidney disease. It also requires the Department of Health and Human Services (HHS) to conduct various studies on rare kidney disease. Specifically, it authorizes the National Institute of Diabetes and Digestive and Kidney Diseases to award funding to public and private nonprofit entities for establishing regional centers of excellence that will increase public awareness, conduct research, and develop resources for diagnosing and treating rare kidney diseases. A center may receive such funding for up to five years, unless extended by the institute. The bill also requires health professions schools receiving a grant from the Health Resources and Services Administration (HRSA) Centers of Excellence program to award fellowships for training on preventing, diagnosing, and treating rare kidney disease in disproportionately impacted populations. Also, the bill expands the priorities of HRSA’s Primary Care Training and Enhancement program to include training for health care workers to care for individuals with kidney disease. Additionally, HHS must conduct several studies and report to Congress on topics such as treating rare kidney disease in disproportionately affected populations, eliminating the need for dialysis or kidney transplants, and increasing public awareness of rare kidney disease.

Sponsors

Text versions

  • Introduced in House — 2025-02-24 — XML

What analysts say

No nonpartisan analysis on file for this measure yet.

What politicians say

No linked claims or utterances yet — no one on record has cited this measure to justify a public argument.

Action History

DateAction
2025-02-24Introduced in House
2025-02-24Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

Lobbying on this bill

Showing 17 of 17 bill mentions.

Honesty note: each filer below disclosed lobbying on this bill — that much the filing tells us. But the dollar figure is their total lobbying spend for the whole quarter across all their issues, not the amount spent on this bill, and the filing never says whether they supported or opposed it.

Registrant (lobbying firm)ClientPeriodReported quarterly amountExtraction
NATIONAL KIDNEY FOUNDATION NATIONAL KIDNEY FOUNDATION Q2 2026 $80,000 Explicit
OTSUKA AMERICA PHARMACEUTICAL, INC. OTSUKA AMERICA PHARMACEUTICAL, INC. Q2 2026 $1,240,000 Explicit
VERTEX PHARMACEUTICALS INCORPORATED VERTEX PHARMACEUTICALS INCORPORATED Q2 2026 $1,200,000 Explicit
AMERICAN SOCIETY OF NEPHROLOGY AMERICAN SOCIETY OF NEPHROLOGY Q2 2026 $60,000 Probable
TIBER CREEK GROUP VERTEX PHARMACEUTICALS Q2 2026 $60,000 Explicit
TRAVERE THERAPEUTICS TRAVERE THERAPEUTICS Q2 2026 $140,000 Probable
AMERICAN KIDNEY FUND AMERICAN KIDNEY FUND Q2 2026 $240,000 Explicit
ALSTON & BIRD LLP TRAVERE THERAPEUTICS Q2 2026 $70,000 Explicit
ALSTON & BIRD LLP TRAVERE THERAPEUTICS Q2 2026 $70,000 Explicit
NATIONAL KIDNEY FOUNDATION NATIONAL KIDNEY FOUNDATION Q1 2026 $100,000 Explicit
OTSUKA AMERICA PHARMACEUTICAL, INC. OTSUKA AMERICA PHARMACEUTICAL, INC. Q1 2026 $210,000 Explicit
VERTEX PHARMACEUTICALS INCORPORATED VERTEX PHARMACEUTICALS INCORPORATED Q1 2026 $1,140,000 Explicit
TIBER CREEK GROUP VERTEX PHARMACEUTICALS Q1 2026 $60,000 Explicit
TRAVERE THERAPEUTICS TRAVERE THERAPEUTICS Q1 2026 $200,000 Probable
AMERICAN KIDNEY FUND AMERICAN KIDNEY FUND Q1 2026 $230,000 Explicit
ALSTON & BIRD LLP TRAVERE THERAPEUTICS Q1 2026 $80,000 Explicit
ALSTON & BIRD LLP TRAVERE THERAPEUTICS Q1 2026 $80,000 Explicit

Source: Senate LDA filings.